Hemophilia Organization Opens Registration for Inhibitor Summit
Every year the National Hemophilia Foundation organizes 4 day event sessions for families/friends who have a loved one with hemophilia. Aside…
Posts by tag: factor 8 deficiency
New Event Listing – Wheels for the World III
WeBleed staff recently had a fundraising event submitted from a hemophilia advocate raising money/donations for SaveOneLife. “Wheels for the World…
UNITED STATES – Wheels for the World III
Event – Wheels for the World III Location – Los Angeles, CA to Savannah, Georgia When – 4/19/14 – 5/16/14…
New Mom’s Blog Brings Fresh Viewpoint for Parents and Hemophilia
WeBleed staff is happy to showcase a newly released featured blog called “Blessed Blood.” The blog states that “Blessed Blood”…
Meet the Newest Player in Hemophilia Pharma: Alnylam
For those with the chronic condition hemophilia, more medication options should be on the way. Meet Alynlam: Alnylam’s genetic medicine programs…
WEBLEED POLL QUESTION – 1/21/2014
For your bleeding disorder, when/how often do you infuse? Use your voice and let us know. If you clicked “Other”,…
Pharma/Bio-tech Update: BioMarin Announces Selection of Factor VIII Gene Therapy Drug
BioMarin develops and commercializes innovative biopharmaceuticals for serious diseases and medical conditions. Now they can add hemophilia to their list. In…
Q&A with NFL player and hemophilia advocate
Recently a football player that plays in the National Football League (NFL) gave a brief interview in which he spoke…
Hemophilia Organization Opens Registration for Advocacy Event
Do you or someone you know have hemophilia and looking for ways to advocate for it? Look no further than…