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Posts by tag: von willebrand disease

Wish comes true for vWD patient

Wish comes true for vWD patient

February 07, 2014

A 12 year old boy who suffers from a severe case of von Willebrand Disease (vWD) had his wish come…

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WEBLEED POLL QUESTION – 1/21/2014

WEBLEED POLL QUESTION – 1/21/2014

January 22, 2014

For your bleeding disorder, when/how often do you infuse? Use your voice and let us know. If you clicked “Other”,…

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Canada – Young Girl with vwd released from hospital after 2 years

Canada – Young Girl with vwd released from hospital after 2 years

January 20, 2014

Inspiring story out of Ontario, Canada today.  Sixteen year old Sarah Byars was recently released from the hospital after suffering…

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Importance of Family History During the Holidays

Importance of Family History During the Holidays

November 27, 2013

The United States Surgeon General’s office is hoping food isn’t the only thing families will be sharing this Thanksgiving.  The…

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International Conference Highlights Breakthroughs in Bleeding Disorders

International Conference Highlights Breakthroughs in Bleeding Disorders

November 25, 2013

Earlier this month, the Center of Excellence in Thrombosis and Hemostasis (CETH) of King Saud University’s College of Medicine held…

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Florida Girl with VWD gets “Hope”

Florida Girl with VWD gets “Hope”

November 25, 2013

A Jacksonville teen who suffers from von Willebrand Disease (vWD) and osteogenesis imperfecta (a condition that makes her bones easily…

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Link between Clotting Proteins & Heart-valve Calcium Deposits?

Link between Clotting Proteins & Heart-valve Calcium Deposits?

November 07, 2013

Von Willebrand Factor (vWF), is a clotting protein that aids platelets in forming clots when needed in blood vessels.  When…

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State closes health insurance gap for children with bleeding disorders

State closes health insurance gap for children with bleeding disorders

November 06, 2013

The state of New York has just passed a bill that will add coverage of at home treatment for children…

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