Ohio – Beer Festival Benefits Local Hemophilia Chapter
Live in Ohio? Thirsty for an ice cold beverage? Want to give back to a local non-profit, maybe even a…
Posts by tag: factor 9
Republic of Indonesia – Patients with Hemophilia Travel Long Distances for Treatment
A couple of mothers with sons who have hemophilia recently shared their story with The Jakarta Post. Both mothers explained…
PHARMA/BIOTECH UPDATE: BAYER LONG-ACTING FACTOR VIII DRUG SUCCESSFUL
Positive news for the hemophilia community today. Bayer HealthCare announced via a press release today that the company’s PROTECT VIII, a long…
Hemophilia Organization Dinner Honoring Those in Bleeding Community
The National Hemophilia Foundation (NHF) announced the date of their 4th annual Spring Soiree where they will pay tribute to…
WEBLEED POLL – WHAT WINTER OLYMPIC EVENTS WOULD YOU COMPETE IN?
The 2014 Winter Olympics in Sochi, Russia are well under way and our staff got to thinking about the numerous…
Hemophilia Organization Opens Registration for Inhibitor Summit
Every year the National Hemophilia Foundation organizes 4 day event sessions for families/friends who have a loved one with hemophilia. Aside…
New Event Listing – Wheels for the World III
WeBleed staff recently had a fundraising event submitted from a hemophilia advocate raising money/donations for SaveOneLife. “Wheels for the World…
UNITED STATES – Wheels for the World III
Event – Wheels for the World III Location – Los Angeles, CA to Savannah, Georgia When – 4/19/14 – 5/16/14…
New Mom’s Blog Brings Fresh Viewpoint for Parents and Hemophilia
WeBleed staff is happy to showcase a newly released featured blog called “Blessed Blood.” The blog states that “Blessed Blood”…
Meet the Newest Player in Hemophilia Pharma: Alnylam
For those with the chronic condition hemophilia, more medication options should be on the way. Meet Alynlam: Alnylam’s genetic medicine programs…