CSL Behring Grant Gives Medical Professionals Guidance with Affordable Care Act
March 24, 2014; Posted by: WeBleed staff
CSL Behring grant will help train medical social workers and patient advocates on Affordable Care Act (ACA).
Understanding the Affordable Healthcare Act (ACA) can be a challenge. With the introduction of the ACA a few years ago came with a different perspective of health care for those living in the United States, especially for those with chronic conditions like hemophilia and von Willebrand disease (vWD).
The pharmaceutical company CSL Behring is awarding a Local Empowerment for Advocacy Development (LEAD) grant to help bleeding disorder patients develop a clearer understanding of ACA and potential areas of concern according to a release from The Wall Street Journal. The LEAD grant will help the state of Indiana’s hemophilia chapter, Hemophilia of Indiana (HOI) help close the information gap.
HOI staff will be able to provide training for:
- National Hemophilia Foundation (NHF) chapter staff.
- Hemophilia center social workers in five states — Indiana, Michigan, Wisconsin, Illinois and Missouri. — The training will be held this upcoming August in Indianapolis, Indiana.
- Staff will be better equipped to monitor ACA implementation for people with bleeding disorders.
“As the details of this complex healthcare insurance reform initiative become clear, the LEAD grant will enable us to conduct training that addresses areas of concern that are identified as the ACA is implemented, such as issues around the healthcare exchanges” according to Scott Ehnes, executive director of Hemophilia of Indiana.
Since the program was established in 2008, CSL Behring has awarded 51 LEAD grants to patient advocacy organizations totaling more than $630,000. Proposals are being accepted for the next grant cycle. The deadline for submitting a proposal is April 30, 2014.
Photo Credit – CSL Behring
