West Virginia – Bowling for Neutropenia
A West Virginia resident is taking things into her own hands when it comes to raising money for a disease…
Posts by Category: Everything Else
March Awareness Month Quick Facts
Have you ever heard of a blood clot? How about a bleeding disorder? Does deep vein thrombosis or Factor V…
Canadian Citizens Affected by Atypical Hemolytic Uremic Syndrome, Denied Publicly Funded Treament
Canadian patients affected by the ultra-rare blood disease Atypical Hemolytic Uremic Syndrome (aHUS) are eagerly awaiting treatment for their disease….
Ohio – Beer Festival Benefits Local Hemophilia Chapter
Live in Ohio? Thirsty for an ice cold beverage? Want to give back to a local non-profit, maybe even a…
Actor Dies From Rare Blood Vessel Condition
Monday morning saw the passing of one very funny man. Harold Ramis, best known for portraying Egon in the movie…
Motorsports: DVT Strikes NASCAR Driver for the Second Time
“Because I waited and ignored the symptoms, it almost cost me my life.” This is a direct quote 30 year…
Fundraiser and Bone Marrow Donor Search to save 7 Year Old’s Life
Seven year old Californian Mason Morash was diagnosed with aplastic anemia in December of 2013 after he began experiencing problems….
Republic of Indonesia – Patients with Hemophilia Travel Long Distances for Treatment
A couple of mothers with sons who have hemophilia recently shared their story with The Jakarta Post. Both mothers explained…
Mississippi – New Mom Diagnosed with TTP needs platelets
According to Medicine Plus, thrombotic thrombocytopenic purpura (TTP) is a blood disorder that causes blood clots to form in small…
Montana – Young Girl Thanks Her Donors
Diamond–Blackfan anemia is a rare blood disorder affecting 1 in 1,000 people. 7 year old Bria Koch is one of those…