Canada – Mom with Rare Disorder Gets Help From Daughter
May 15, 2014; Posted by: WeBleed staff
Carrie Stogryn’s daughter and her classmates presented signatures to petition Alberta Health Minister for public funding of rare drug.
Cool and selfless story out of Canada today. Carrie Stogryn, a mother of five and a local business owner in Alberta, was recently diagnosed with a rare blood disorder known as Atypical hemolytic uremic syndrome (aHUS) that only a affects 50 people in Canada. This disorder can cause harm to the body’s major organs leading to morbid results.
“Basically, your body thinks your own blood is an intruder and it starts creating lots of clotting trying to kill this intruder off as it would with something unhealthy,” Stogryn told the Edmonton Examiner.
The drug Stogryn needs to treat the disorder, called Soliris, gets the body to stop attacking its own blood cells. However, it is not available for Stogryn through public funding in Albert.
Enter Carrie’s daughter and her high school classmates. While studying democracy in her social studies class, her class was encouraged by Stogryn to gather support for funding Soliris for aHUS treatment. The students were able to obtain over 4,500 signatures on a petition to publicly fund Soliris’s use.
The signatures are currently being presented to the Alberta Health Minister with a result soon to follow. WeBleed will keep you updated on the outcome of Carrie Stogryn’s story.
Photo Credit – Edmonton Examiner
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